My Most Recent Health Update - As Seen On My GoFundMe Campaign

Here is my most recent update. If you would like to contribute, and oh my goodness will it help, here's the link for the campaign: www.gofundme.com/healingwithheather

"Today I got my third nerve block!  The doctors STILL have no idea what's causing my constant pain, but this has so far been the only treatment that helps lessen it.  Of course it's not a perfect solution; its kind of like plugging a leak in a boat, but really needing to get back to shore.....but for now, I'll take whatever keeps me from drowning.  Plus, a nerve block is the only thing that has allowed me to eat food, and after not eating for two and a half months, I assure you that food is the greatest of all things :)

The included photo is me before the procedure, the IV, me after the procedure, and an example of the amazing food that I can now eat. 

Also I went to mention a little bit about invisible illnesses.  My before picture looks Facebook-profile worthy, but what you don't see is how much effort it took to shower this morning, when every part of me was almost too sore and pained to just get out of bed.  So just because I look like myself and "healthy," that doesn't mean that I am.  That's what an invisible illness is. 

Even directly after the procedure, when I was still loopy from the anesthesia, a woman angrily forced me to give up my seat for her, assuming that I didn't have my own health problems simply because of the way that I look.  I was too tired and weak to fight with her, and gave up my seat, and then she told me that I should smile....... Clearly not everyone is very educated on or open to others' struggles, so if you glean anything from this update, I hope it's considering the pain you can't see, and to value and respect it as much as you would more obvious injuries, such as someone with crutches or with a cast. 

But of course this won't me a stretch for you; you are the good ones, as you've already gone of your way to help me, showing that you understand.

The procedure was $30, and then I spent $70 on medicine, and that's $100 I didn't have without your help. Thank you again. You all have made my healing possible. I really couldn't have done this without you."

A Garden Party to Keep the Fairy in Me Buzzing

I made myself a picnic this weekend.  It was full of tea and cheese and toast, and I couldn't have enjoyed this treats even just a month ago.  I'm still struggling in many ways, but it was fantastic treat to remind myself that I still am improving.

(If you would like to contribute to my progress, here is the link to my GoFundMe campaign.  Just $10 is a ride to a doctors appointment, or a month supply of one of my seventeen medications.)

Health & Emotions: "I hope that by expressing myself, I can connect to those that understand the unusual"

Hey loves.

I wish I had better news for my update to you, but I’m still struggling with everything.  

Health-wise, my diet was changed last week back to solid foods, but the pain I get when eating is the same as it was before all of my hospitalizations.  My doctors are confused and I am, too.  I should be better by now.

 And it’s hard, my friends, to get out of bed each morning and take my meds when I feel like nothing is really helping.  I still do it because I am an intelligent individual and know how important it is, but emotionally it gets harder each day.  Plus I still need to find a place to live in the next fifteen days and I don’t know how I’m going to balance all of this when I have to go back to work. 

This is all just a lot for just me.

To help keep my spirits up, I’ve been trying to do social things every few days.  I went to a party, for instance, to see some of the people that I miss and had welcomed into my world a few months ago.  It was fun and full of some incredible friends, but it was also really hard.  I didn’t feel strong enough to stand for a lot of the party, and I was in pain while trying to enjoy myself and seem “normal.”  Also not everyone there knew how hard things have been, which is fine and totally their choice, but made it a bit challenging.  

For example, someone told me that I look skinny and meant it as a compliment…..but I’m skinny because I’ve been in too much pain to eat and so I’ve been malnourished for the last month and a half.  It has not been “good” weight that I’ve lost; I’ve felt what it is to stave and to feel my body deteriorate….so all of that adds a different connotation to “skinny” than what is normal and expected.  And the sweet person simply meant to compliment me.  So I thanked her with a genuine smile, but it reminded me of how different this experience has been from what people are used to.  

Reintegrating into the “normal” world is going to continue to be hard, I think.  

But writing about it helps, and I am definitely not the first person to feel this way.  So I hope that by expressing myself, I can connect to those that understand the unusual, and at the very least, it will allow us to feel together in this and not alone.

And I’ve definitely felt that connection throughout this experience.  Sharing my story has been powerful beyond what I had imagined.  I’ve been floored me how empathetic people are, and willing to reach out.  And I’ve discovered this power of human connection in all scales of sharing my story.  

From the GoFundMe campaign, where I finally asked for help and in return have been able actually take care of myself without having to stress; to even something as simple posting a picture yesterday of a syringe.  See, yesterday I began a medicine that requires injecting myself every two weeks and so I posted a picture of the syringe (which I hope will eventually not scare me and make me cry).  And I had about four people all reach out with their empathy and tips for their own experiences with syringes.  People really are amazing.  Here is this scary new thing, and I immediately had a support team willing to be there for me.

So although I don’t have huge news on health progress, and yes, it still is a battle each day, I definitely feel like I have troops beside me in this.  Not everyone needs to read these words, nor do they have to even care about what my life has been like these last two months (or 23 years)…..but it’s those that do care, that are reading and reaching, who choose to be my support, that allow me to get out of bed each day and continue to fight this battle.

So to those of you that are my troops: I can’t adequately express how important you are.  

You are my courage, my wisdom, and the voice telling me I will survive this battle.  And for that, and everything, I can’t thank you enough.

I Am In Awe

I woke up this morning in awe.

First for good humans.  I started a GoFundMe yesterday (finally acknowledging that I need help with everything that I am facing), and it hasn’t even been 24 hours and I’m almost a third of the way to my goal.  And this is you!  You beautiful and kind souls that are reading my words, caring about my stories and my smiles.  I can’t stop crying happy tears that you are in my life.

I’ve spent so much of my adulthood trying to prove myself as a good human: one that gives more to the world than I take….and for this much kindness to be sent to me, both towards the campaign, but also very much in your words of courage and support….it means I’m doing it.  

Your love means I can be proud of who I have become: because to receive this much warmth…I must be doing something right.  

And I really do love you all so very much.  There have been times when the word “family” made me sad-cry; as if it were a word a language that I wasn’t allowed speak.  Like I was an outsider to the concept of a family, and that I never would achieve actually having one.  

But now, especially after my last hospitalization, with everyone who read my story and reached out and sent their love….when I hear the word “family,” I now think of all of you.  

And so I cry cathartic tears of fulfillment and gratitude, in spite of the hardship that I face.

So thank you for that validation, your love, and granting me the courage to continue.

As for awe number two:

I am exactly where I need to be.  I moved to this city to pursue TV & film, and ultimately my goal of using art to give people hope in being alive.  I have a weird history with this city (one that would require a much longer post), but my mantra has always been not to let my circumstances limit me.  So I came here for a fresh start.  It’s been a crazy start, but in the hospital I got to see the sunrise each morning, and saw it as an opportunity each day to heal and grow closer towards my dreams. 

So when I saw the sunrise this morning, far, far from that tiny hospital window, I saw it as an even greater beginning; one as vast as the pink sky itself.  As if my new life were greeting me today with arms full of love and opportunity.

So my friends, my loves, my family.  I am here.  Full of gratitude for you and where I am today.

And I am SO happy to be alive.  So stay tuned, because I think we’re in for a great ride.

my reaction to the GoFundMe:

and today's sunrise

Asking for Financial Help

Hi my loves.
I am at that point.
I love you all.


Click here if you'd like to contribute.