Post-Mortem on West Coast Me

          I have had a pretty rough year.  I moved out here under the pretext that I was paving the way for my love and I to live together in a city we had dreamed of for two years.  I want to work in TV/Film and he could do anything out here, acting, programming, urban farming, literally anything, but he just wasn’t ready to leave yet.  So I moved out first and stayed with one of my best friends.  I knew her and her family for over a decade and was so thrilled for the opportunity to save some money as I lived with people that I loved.  

Within the span of a month, however, my once-love said that there was a possibility that he would never move (something that absolutely would have kept me from leaving had I known this before I was already here) and my friend’s family said that they needed my room back and that I had a month to find a new place.

          So I found a place quickly.  It was far from work, however; one day I left three hours before my shift and was still late.  So obviously I needed a different space.  I applied for a room somewhere, almost lived in that landlord’s guest house, and then there was another space that was available in the original building.  It was her old office and I loved it.  It had a loft for the bed, a little patio, and more space than I’ve ever had.  It had a shared bathroom down the hall, but honestly I’d rather share a bathroom than a kitchen, so I was happy.  I also knew that my love would like it, if he moved out here.  He always loves little balconies and there was definitely enough space for both of us.  It was terrifyingly more than I had paid for rent in my entire life, though, even though it was considered cheap for this city.  So I knew that every financial woe I’d associate with him, for making me believe that he was going to come here as my partner, and instead he abandoned me to figure it out on my own.  I realized he wasn’t a part of my life out here, and wasn’t try to be, so I called something that was already done.  Plus without the pressure of him coming here to be with me and to help me, perhaps I wouldn’t resent him for how much I was going to struggle.

          And things were okay for a little while.  It was hard being on my own after a few years of living with a love and before that being surrounded in school by people who knew you and could see you change.  That’s one of the best things about friends; they remind you of when you grow.  And yes, I made a few friends out here.  I pushed myself to go out more than I usually would and with the safe umbrella of my coworkers, I felt confident in my West Coast body.

Things were getting harder, though, and I was losing weight from not eating enough as I couldn’t afford much food after paying rent.  I don’t know how much that ended up attributing to my health, but about two or three months later I was in the hospital.  You know that story though; I was in for 8 days, out for 6, back in for 10, and when I got home I saw that my landlord wanted the space back as her office.  I had signed a year lease, but she never gave me an original copy and when I requested it at this point, the contract now said that it was a month-to-month lease.  She also had a commercial license for the building, not a housing one, so I didn’t have any renter’s rights, and so I had to move.

          Also, at this point, I had lost about half the friends that I made out here and half of the ones that were leftover from high school.  And it makes sense; my life is anything but easy.  Some did it tastefully, some in a way that hurt so much it’ll be hard to ever forgive.  Basically I was in this space of feeling alone and like a burden to everyone I loved, fearing constantly losing those that were still by my side.  It made me afraid to reach out to anyone but I still so desperately needed help.  There were many nights that I wept alone, simply wishing for someone to hold my hand.

It was moments like this that made me really miss my love and my makeshift home out there.  I had more people in Philly telling me that they wished I were closer so they could help, than I had friends left in this city.  And I became nostalgic.  It could be a “grass is always greener” mentality, but I longed for the happiness that I had there.  I tried to get back together with my once-love, too, offering anything: to leave the West Coast, to move wherever he goes, to start over somewhere new, to wait for him until he was ready, even to pay for a plane ticket for him to see if he could be happy out here; because I realized that more than a career in TV/Film, I want to have a life with people that I love.  And in the last two years I have lived in four cities, and was happier in the three that I was together with him, than I have been here without him.  He declined.  It’s so hard to know exactly what I want and not be able to work for it.  Everything I’ve ever wanted I could achieve with hard work; it may not have been easy, but it was always worth the happiness that I made for myself.  And I’ve discovered a key to escape my unhappiness here and was told not to open that door.

Also around this time was when I moved in with the roommate that after one day together decided she wanted to break our lease.  That actually was to my benefit, ironically, because I didn’t want a roommate anyway (especially one that was that unaccepting) and our building manager showed me a studio in a different building that he manages and it’s exactly what I can afford and it’s all mine (and no shared bathroom this time).

          So aside from feeling like I am in a city where I’ve only felt pain and loss, I have the perfect apartment.  It’s also about the price that a studio in any city would be, so it helps me feel less like this city is taking my money and my freedom with it.  That said, I don’t know how to find my happiness now.  It’s not that I need someone else to be happy; I’m happy by myself and like myself quite a bit.  Instead, it’s that I feel a greater joy at making those that I love happy.  I’d sooner get my once-love a toy from his favorite anime, than spend that money on something for myself.  I’m not selfless, I still take care of me….there just isn’t that much that I need.  A roof over my head, food that doesn’t make my belly hurt, a blanket because I’m always cold…and that’s about it.  For instance, my little hermit crab has a mansion with three water dishes (salt, fresh and gatorade), two kinds of food, coconut substrate AND sand, mineral cubes, a climbing branch, a giant “tree” to climb on/in, a hermit hut, two sponges and three extra shells.  I also have a humidity gage and thermometer, as well as a nighttime heating lamp to make sure that my baby one has the perfect conditions for the happiest of homes; because seeing him happy makes me happier than anything else.

This is the capacity of love that I want to give.  And without my once-love, I don’t know where to begin in rekindling that extra happiness.  I think the first step is getting out of this isolation of no work and no socializing.  I need to be around people again.  That’s why I decided to go back to the East Coast for my birthday.  So many people I love are there, and it’ll give me a chance to see my former city without it being tied to my ex.  Perhaps it’s the layout of the city that I love.  Maybe I identify more with the hard working East Coast over than the lax spirit of the West.  I could miss traveling and hopping on a bus for two hours and being in a different state.  Perhaps I miss walking around for everything I need and feeling independent of rides from friends.  Maybe it’s that I felt safer there than I do here.

          One of my doctors thinks not feeling safe is a key to why I’ve been in pain.  She thinks that my brain has been mimicking the symptoms of my Crohn’s disease to warn me that I’m in danger.  Perhaps it could be that I no longer have 3,000 miles between me and the woman that abused me.  Maybe it’s that my ex always made me feel safe, and now I’m on my own.  I don’t know how to feel safe by myself.  And I don’t need anyone to help me with the battle, I just want someone to hold my hand after the fight.  (And the hardest part is I know whose hand I want to hold, and don’t really want anyone else’s.)

          So I’m really excited to see what this trip brings.  I’m hoping for clarity, less pain, lots of fun, and to get to see the people that I love so much.  I really felt like myself last year, that I was growing into the person that I want to become.  Hopefully this trip will help bring that forward motion back to a city that’s felt pretty stagnant.  Maybe even, through the eyes of my all-knowing friends, they’ll help me see that in this year, which has felt a like a waste of my time, actually helped me grow into something I can be proud of.  That’s what I hope for the most.  This city has never been very good to me, and I’ve lost so much this year; I don’t want to regret moving here.

I Couldn't Sleep, I Was So Excited...

1 am inspiration:

I have no stairs to get out of bed.  I haven’t left my room in over 24 hours because everything I need is in here.  My kitchen, my sick, my bathroom.

At my old “studio” there was no running water and I had to leave my space, first climbing down from the stairs to my bed, across the entirety of the apartment, to then pray that no one was using the bathroom when I needed it….no one is ever in my bathroom now.

I can leave my time of the month things by the toilet.  I can leave my conditioner and soaps in the shower, without worrying about them getting used or stolen or even just moved.  I keep all of my spare toiletries in there too.  No one is gonna take them because this is all mine :) 

I don’t have any weird roommate that’s going to judge me for what I am facing.  No one comes in here, into my sanctuary, unless they will contribute to my happiness.  

And I get to make that rule and it’s going to be honored; no having to convince a sociopath that the space I am paying for merits privacy.  That is understood.  I even have two locks on my door :) 

And there’s a little desk in my closet!  It’s like a hiding in an already hidden place.  Inspiration has come to me there, twice already in the last day.  I love it.  I am going to love this so much.

It’s still hard because I didn’t want to live alone.  I had a solid partner once, who was supposed to share this with me.  When I moved here almost a year ago, I thought I was coming to stake out a place for our future.  Now it’s only mine that I’m looking for and I have found it.  At least for the next year, this is my near future, my present, my space, my room; and you know what?

I love it.

It’s little, but it’s all I need, and it’s all mine.  I am very, very happy here.

My Life is Changing

I’ve lost a lot since being sick, and have had a lot of time to think about what matters to me and why I’m still fighting.  It’s not art.  I thought it would be.  I thought that being in this city to pursue what I’ve been working towards my whole life would be the reward.  But it’s not.  I’m not finding student films to audition for, nor writing screenplays as I am on bedrest: Instead I’m dying to jump into someone’s arms.  To spend time with people that love me.  To make scarves and crafts for the people I love.  Anything to show them how much they matter to me.  People are everything, I’m realizing, and I’m willing to give up anything to be with them.  More than any career, I want people to love, and it’s terrifying to release myself from a goal that I’ve had for over a decade, but it’s also a relief to know what I really want.  And that’s a family.

So I’m not saying I’m going to go out and get pregnant and raise a bunch of spawn to feel loved, but rather I’m willing to make changes to my life to be with those that I still have left.  Because this has been some of the hardest months of my life (and I haven’t had the easiest of lives) and those that are still here, willing to hold my hand and listen to me as I cry, they are more important to me than any possible career.

I don’t exactly know what this means: I still only know how to express myself in writing and feel more connected to acting than anything I’ve ever found.  But I would rather have a life without artistic success but people that I love, than achieve success alone.

So we’ll see what the future brings.

Tomorrow I move to a new home, one that I never planned on having, without the people I thought I would live with.  So I’ll see how it fits into my future. In the meantime, I know  I am willing to do whatever it takes to keep in my life those that I love, though I don’t know yet what that means….or if that’s enough not to lose them.  But I have to hope it is.

So change is happening and change will continue to come.  But if it brings me closer to those that I love, then I have to love change, too.

image by Tobias Tovera

How Hope Wins: Life is Like Hopscotch

So unsurprisingly, these last few days I’ve been thinking a lot about the importance of hope.

It’s interesting, hope works a lot like my pain management does.  To explain, I’ll clarify a little about my meds: Right now I’m on a narcotic that I can take every 4 hours.  One way to do this, would be to wait until I am in pain, and then to take the pill.  But then so much of the drug is then committed towards getting me out of the bad pain and back towards neutral…..this is sounding unnecessarily complex.

Hmm…Pretend it’s hopscotch.  Where I’m trying to hop towards being pain-free, and I have the pain monster behind me.  So the drug can help me move 4 hops forward, but the pain has already made me move backwards three.  So when I take the medicine, I really am only moving forward one square towards being pain-free!  Thus, the other way to try to manage pain is to take the medicine every 4 hours, not waiting for the pain to join the hopscotch game.  That way I can move forward 4 hops every time I take it, and be closer to feeling better.

(Now, this is a hopscotch game to play with doctors, of course, because narcotics are a little more complex and potentially addictive than childhood games, but as long as that is known, the metaphor holds.)  (….we can pretend it’s a game of hopscotch over a lava pit and my doctors are my hopping-coaches.)

So.  I have realized that hope works like this too.  It’s a hopscotch game headed towards happiness, with the dark feelings behind me.  If I try to think of something positive, I will move forward three squares towards happiness.  But if I wait for the sadness to take over and pull me back 6 hops….then I’m barely moving forward.  I’m still hopping three steps towards happiness, but I’ve been pulled so far back that it may not even feel like progress.

Thus I have learned that happiness is something that must be managed like pain: with a daily effort towards moving forward; otherwise it’ll feel like the darkness has taken over in my game of hopscotch.  And it’s important to feel like I’m always moving forward; that I have that control over my own happiness.

In my last post, circumstances had allowed the sadness to pull me so far back that I felt like I was losing my hopscotch game towards happiness.  Generally, I would hide in moments like this, not publish them….but I am committed towards the honesty of where I am in my healing process.  So I wrote about it.

But.  Just because I was losing the game then, doesn’t mean I’m not doing everything I can now to hop towards happiness.

It’s just going to take a little more daily effort, I think…..which to me sounds like a lovely project.   And I have a few ideas a-brewin’ :)

In the meantime…why is all of this relevant?  I have another nerve block scheduled for today.

This is the treatment that was the *first thing* to help me in months, which then failed after three days.  So as you can imagine, it was a ton of excited hops forward, only to be pulled even farther back by the fear that the pain monster is always going to win.

And yet I am nevertheless trying again today.  It’s a gamble and I’m wagering my physical and emotional states….but again, I need to feel like I am in control over my own hope and happiness.

So even if the treatment fails again, three days of relief where I feel released from the clutches of pain and disease…..perhaps this is such a victory that the elation of it can bring me residual hope, even when the treatment begins to fade.

Because even though I’ve spoken of two hopscotch games, the physical one of hopping from pain towards healing, and the emotional one of moving from sadness to happiness…they’re really both the same game, with  the bad behind me and the good in front of me.

And I’m still learning all the rules…..but I am thinking that I can choose the number of hops I take.  I think I can limit how far back pain pulls me, and I think I can allow my own victories to boost me even further forward.

So in addition to the nerve block, today I’m also trying a bad-block.  And I need hope to win.

This is my new goal.

Wish me luck today ;)

(above are four moments where hope won during hopscotch.  The first time I got to wear my clothes after 10 days in hospital gowns; a puppy that decided she loves me; a security guard that made me feel confident in a wheelchair; and a sparkly reminder that everything is going to be great.)