Saturday, August 13, 2016

I Couldn't Have Wished For a Better Thing to Read When I'm Crumpled in Bed in Pain

I'm flying to Austin tomorrow for a week of training, giving me just 10 days when I get back to LA to pack up what I can carry, mail as much as I can afford to keep, and donate everything else (without having a car to get to these places) before I leave for NY September 1st.

I still don't have someone to take over my lease, I haven't found a place in NY to live yet, and there's still 1,000 other things I haven't gotten to do (like canceling my internet, getting medicine, etc...).

So on a day when I feel like a quarter of what I should be, it's nothing but rewarding to've come across this article about a fellow Crohnie's reaction to another person battling our same disease managing to win a silver metal.

Like the author of the article says, somedays it feels like, "Hey, I probably can’t achieve greatness when my body barely wants me to achieve alive-ness."  And there's also a weird sense if inferiority that if someone with our disease managed to do so much and yet I can't get out of bed....I must be failing somehow.  But as the author states, there's a strange validation we get from reading the NBC Sports article outlining how Crohn's has impacted the Olympian Kathleen Baker; because it's not a tale of someone rocking the disease better than I have, it's a story of someone struggling just as much as we have and still finding glory.

It's wonderful to know, on days when I feel like I need to be so much more than I am, that I'm not alone in these feelings.  That there are others who understand my pain and frustrations, even when it feels like so few around me have actually have a clue, and it's incredible to know that just as we're united in our disease, we can be united in our victories as well.

I can't wait to have a headline of my one some day... :)

(And until then, let's just worry about the move)

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